United Brachial Plexus Network, Inc.

Hello everyone. I am Andrea. I am married to Chad and we live in IL. I have a 2 year old son, Jack, ROBPI, and a 1 year old daughter, Madeline. Jack has had 2 surgeries so far. He had the mod quad last September and the triangle tilt in May. He will be coming out of his splint next week. I have read posts in the past, but now feel like I can post also. I just wanted to introduce myself and say hello. I look forward to getting to know you all.

Hi Andrea. Welcome! How is Jack dealing with all of this? How about Madeline? You must be very busy!!
Have you used the online registry here? You may be able to find other families near you.
Keep us posted on Jack's progress.

Take care!
Peggy

Hi Andrea

I'm new here too - lovely to meet you.

I'm Kathy and I live in the UK with my partner and 3 kids, the oldest (now 10) has a right Erb's Palsy.

I'm amazed by the amount of knowledge US mums have about their child's precedures and even which nerves are damaged. Over here I've basically been told Erb's Palsy and have yet to learn about what nerves were damaged and what all these procedures mean. My son had exploratory surgery and scar tissue removed at 3 months, and has had two sub scapular releases since. That's all I know about, and to be honest I don't even know a lot about that!

Anyhoo, I'm waffling on, lovely to meet you.

Kathy

Hi Andrea!

Welcome to the boards. I hope you find this group to be as helpful and welcoming as I have found it to be over the years.

I'm Cherie, wife to Jason, and mom to Sarah (2 1/2 - ROBPI). Sarah has had the MQ and will have the Triangle Tilt in August.

I'll look forward to getting to know you!

Cherie

Hey Andrea

It was nice to talk with you yesterday! I think you will find this board very helpful. I hope Jack is doing well with his splint today. Hopefully the remaining time will fly by for you guys! Talk to you soon.

~Krista~

Hi Andrea and Family-

I have been coming to this biard for a few months. Everyone is so welcoming, caring and sharing. Welcome..
oh- I am Marlyn, married to DiLeonne with 2 boys. Manny is 5 and Javier (ROBPI) is 1. He had primary w/ nerve grafts in February.

*Marlyn
in VA moving in 1 week to NJ

Hi,

I am from chicago and wanted to include the support group link for that area if your close enough.

http://www.chicagobpi.com/

I am sure you already have it but just in case.

Hi Andrea & Kathy M

Welcome to UBPN Message Boards. You will find a great deal of support here and and I am sure will be able to give a great deal of support as new families arrive seeking information.

I am Kathleen M... aka KathyM aka Kath... I finally settled on Kath for my sign in because when I first came to UBPN there were so many kathy's and Kathleen's... LOL...When I settled on Kath... I said I will never change my name again... LOL... I am getting to old and might forget who I am. Besides most of my friends just call me Kath ... My family still use Kathleen.

I am on the Board of Directors of UBPN and right OBPI. Married for almost 40 years three children and 5 grandchildren... I live in NY

Kath

Welcome to the boards and this lovely support community!

My name is Tanya. I'm married to Sean and we have 2 children. Casey turned 10 years old this spring (he has no injury) and Amber is 2 1/2 years old (ROBPI). Amber has had only one surgery this past December. It was the ACR with Kozin in Philadelphia.

We live in Upstate NY.

Welcome again.

Tanya in NY

Andrea:

So glad you're now on "officially!"

Janet