United Brachial Plexus Network

<r>Hi and congratulations on your pregnancy!!<br/> <br/> I have ROBPI and have had 2 pregnancies. I suffered terrible back pain also...and the second pregnancy was far worse than the first!<br/> At the time (coz i was the only one in the world with a funny arm PMSL), i thought it was normal pregnanc...

Hi Kath!!! I knew you would remember me!! lol

What time of year are these camps held? I would dearly love to attend one, and will be visiting Florida again sometime between September and November 2009. If i could fit it in that would be awesome!!!

<t>Awww that sounds like fun!!<br/> Couldnt we have it in Scotland instead??? lol<br/> You can all make use of the "travel tips" to get here....simply for resarch purposes!!<br/> <br/> We will be in Florida in November....our only DEFINATE plan so far is Mickeys Very Merry Christmas Party on Novembe...

<t>When we fly from Scotland to Florida, i always use wheeled suitcases for the hold....but hand luggage goes in small backpacks. Simply because a backpack can be squashed down to fit under the seat in front....a small wheeled case HAS to go in the overhead...something i learned rather quickly LOL<b...

<r>I dont know if anyone will remember me as i aint been around, i guess since 2004!!<br/> For those who dont know me, im Janny, 35, single mum to 2 girls, ROBPI and im from Scotland. I have NEVER met anyone else with Erbs!<br/> <br/> Last time i spoke to you guys i think we were gonna have our firs...

Just bumping this post back up to the top!
The Scots are landing in 13 days!! We are all (me and the kids) really up for a "meet" if anyone else is still interested??

Janny

Hmmm this sounds interesting!
Me and my 2 girls are coming over to Orlando from Scotland on December 5th til the 19th and we would be really interested in an Erbs "meet" at WDW or Universal/IOA. Im 32 and have never met anyone else with Erbs!!
Janny

<t>Hi all! I havent been around here for a long time, but perhaps some of you may remember me?<br/> Just thought i would pop in and say hi. This board helped me soooo much when i was going through a bad time with the Erbs. Nowadays, i just get on with it and try not to let it bother me too much!<br/...