United Brachial Plexus Network

<r>Hi <E>:o</E>)<br/> <br/> Firstly congratulations onyour pregnancy!<br/> <br/> I had Chris (10 years old, right Erb's Palsy) a few weeks late. My pelvis was too small to cope with a 10lb 5oz baby, hence the shoulder dystocia which caused my pelvis to split, and his Erb's Palsy.<br/> <br/> During m...

<t>Chris (age 10, right Erb's Palsy) has eczema. It's not something cause by BPI, but as it's commonly found on the backs of arms, the nerve damage makes it more likely for a child to scratch the affected arm so much it gets worse and infected. That's what we found with Chris - he didn't realise whe...

<t>Started Chris' stretches again last night. He was quite uncomfortable at certain points (I have no ides about the technical terms for each stretch). I hate this waiting game but have dragged myself out of the selfish "Why me" attitude and am getting back on with it. Just sometimes I feel (as I'm ...

<t>I'm so sorry I need to vent again.<br/> <br/> Had a nightmare time trying to get an appointment at the GP's (nearly said vets) for Chris' hayfever today (it does get on topic I swear).<br/> <br/> I phoned this morning at the set time, and got the receptionist. I asked for a phone consultation wit...

<r>Morning all <E>:o</E>)<br/> <br/> Thanks for all of your replies. <br/> <br/> I just want to make it clear the Professor Kay is the UK's leading specialist on Erb's Palsy and hand surgery. I'm sorry if I confused you all. He's had absolutely the best team available for his care.<br/> <br/> When w...

Scrap that, I'm not very quick today *lol*. Hot shower and stretching before bed then?

<t>Thank you so much Nancy. We really appreciate the advice.<br/> <br/> I think our main problem with the hot bath etc idea would be that Chris gets this pain in bed, enough to wake him through the night.<br/> <br/> Maybe some stretching exercises to try in bed would be a good idea, but it might be ...

<t>If anyone else has any information on pain in older BPI kids, I'd really really appreciate it. We weren't even warned this could be a problem - we were told that he had finished any treatment and was as "cured" as he's going to get. I had no idea pain was common throughout life in kids that had h...

<t>Hi Andrea<br/> <br/> I'm new here too - lovely to meet you.<br/> <br/> I'm Kathy and I live in the UK with my partner and 3 kids, the oldest (now 10) has a right Erb's Palsy.<br/> <br/> I'm amazed by the amount of knowledge US mums have about their child's precedures and even which nerves are dam...

<r>I checked out your site, and it looks very good. Just a quick word for us non US citizens though - I went to join the message board and it asked me for address and phone number. Now having read this since, I can see why, but I don't hand out my phone number to anyone online. Doesn't make me a law...