United Brachial Plexus Network

<t>Jody, Francine gave excellent advice. You can take as MANY breaks you need if you feel you need to excuse yourself. Another bit of advice is your not on trial..there going to make you feel like you are & you'll feel the need to defend yourself & get upset but TRY not to. I know easier sai...

<t>It is 5 days post surgery for Ashley & she is running around playing no more pain meds not even tylenol! I'm so proud of her!! We were very concerned at the hospital since we couldn't get a handle on pain management. This was her 3rd surgery & i never saw her in so much pain....i cried w/...

<t>Ashley just had the osteotomy on the 14th. Post-op pain was brutal for her for about 3-4 days. I have never seen her in so much pain & she's had two surgeries previous to this. I hope that anyone who does this for this child is well prepared for the emotional rollercoaster...cause we weren't....

<t>Ashley has just had her third surgery. Biceps rerouting, tendon lengthing, & an osteotomy & man oh man what a nightmare this was!! I don't know how many of your kids have had the osteotomy but I certainly wasn't expecting my child to be in as much pain as she was for two days! I wish i ha...

<t>Your definitley NOT abnormal, in fact I felt the same way after my daughter was born & didn't decide to pursue it legally until my daughter had to have nerves taken from the back of BOTH legs & transplanted into her neck because C5,C6,C7,& C8 nerves were torn from her spinal cord not ...

<t>Thank You Francine...Believe me I will take all the well wishes that I can.<br/> Dr. Waters is doing the biceps/tendon lengthing & the osteotomy. He told us that if those procedures go smoothly & he doesn't run into difficulty he'd like to do the muscle transfer in the wrist at the same t...

<t>Hi Everyone!! <br/> We're all here gearing up for Ashley's third surgery & I thought if i could explain some of whats going to happen maybe some of you that have had these procedures done could give us some insight on recovery & how much the surgery corrected the issue at hand.<br/> She i...

<t>Hi there: I know what you mean about finding this group. I couldn't find anything when my daughter was born almost 5 years ago...i felt so alone. Our ob didn't even come to visit me in my room or even try to explain to me what happened & guide us in the right direction...she delivered my baby...

<t>Hi Francine, Ashley will be 5 in January. The issue is that her triceps are weaker AND misuse. We were just starting E-Stim when her visits ran out with out OT. I would love to get a unit for home but I don't even know where to begin or even if our insurance would cover it. Could you direct me in...

Thanks Francine. I wish i could purchase something for Ashley thats permanent. We're haVing so many problems with preventing her elbow from tightening up.
I'll definitley take a look...maybe it'll help us w/ some ideas. Thanks, Melissa